I am almost never fearless. What I am is full of hope, stubbornness, humor, anxiety, gratitude, and coffee. It may not sound like much, but it gets me through the day.  ~ Nanea Hoffman

One year ago today, we were sad to be back in the hospital with our tiny P, who needed to have surgery to place a G-tube so that she could begin to regain some of the weight she was losing… Our tiny girl was down to eighteen pounds, and everyone was worried. She ended up…

Two years ago today we walked out of a hot civil affairs office as a family of five, holding our new very sad, very angry, very sick new little girl. We were scared, and she was terrified. When she wasn’t sleeping, she was screaming in terror, non-stop for days. Finally, just before it was time…

Other things may change us, but we start and end with family. ~ Anthony Brandt Photo cred: John Chase

When did my baby get so big? Just a baby in a hat… So excited to get her hearing aid mold changed… New purple hearing aid mold. First time at the aquarium for the baby… What happens when we don’t nap… Sometimes, even an eight year old still needs a nap. That thumb, though…bless. Hospital…

We celebrated our boy last weekend…with a “storm” birthday. When I asked him what kind of birthday theme he wanted, he didn’t even think about it. He knew right away, he wanted a storm theme. I was confused, haha… what does that mean?? He wanted storms…tornadoes, clouds, rain, lightning… Apparently, this is not a theme…

And then the Summer was over, and everyone went back to school. Clearly, little M was devastated…except not at all. She was so giddy with excitement, she could hardly stand herself. Baby J feels like he is such a grownup. He also feels like he should now stay up later, have his own iPad, and…

Sometimes real superheroes live in the hearts of small children fighting big battles. ~ unknown